Thoughts from a Member of our Village

Along the way I will share some thoughts and memories from various village members, without whom we would NEVER have made it to this point in our journey.  First up - Andrea, our oldest son's 3-year-old preschool teacher.   Her unique background - therapist turned pre-school teacher allowed her to see past the behaviors, provide insights into the triggers and offer support in how to best work with Joseph.  She led by example in every way possible and was a calm and encouraging educator that always saw the potential in our child, even when others were ready to throw in the towel.   While we now live on opposite sides of the country, our connection and relationship remains strong.    She will always hold a special place in our hearts and I am forever grateful to her for many things including the unconditional guidance, support and love she provided from the first moment.  Read on to see what she had to say………….

The first time I met Lisa and Joseph, they walked into my classroom.... Joseph with a big smile and Lisa kind, gentle and a bit nervous.  As Lisa watched, I interacted with Joseph.  He immediately spotted a huge, heavy, wooden castle (Melissa and Doug for those of you who know their products).   Joseph went straight for it and threw it across my room.  Mom stared in disbelief and I immediately got down to his level and firmly, but lovingly, told Joseph he was not going to do things like this in my class.  We picked it up together.  I showed him how it was broken and that we could no longer play with it.  I took him around the room, staying by his side, but allowing him to touch and explore.... we connected.  Mom and Dad had to decide if our school and my classroom was the right place for their son.  One thing was certain, regardless of their decision, Lisa let me know she would replace the doll house and she did.  Finally, their decision was made and Joseph was enrolled in our school and became a student in my classroom.

The year had its ups and downs, but as the year progressed there were far more ups than downs.  Joseph caught on to my facial cues very quickly and began to look for these before reacting.  That smile of his, wow, it could make me melt.  We became a team, we worked together.  His social skills were not there and he had difficulty with his boundaries with his friends.  Joseph would react with his body, getting too close, kicking, hitting.  I didn't want his friends to shy away from him, so I stayed close enough to stop the physical interaction, but far enough away to allow him the space to grow.  So, went the year.... tremendous growth in an incredible little boy with that big smile.  

When Joseph loves he loves hard.  He loves his family, he loves his friends, he loves school, but most importantly, Joseph was learning to love himself.  In doing this he needed to learn to trust himself.  He became very attached to a Lightening McQueen car I had in my class.  I began using this toy as a special tool.  We talked about taking care of Lightening McQueen, being gentle, kind and loving with "him".  We talked about how we needed to treat our friends like we treated Lightening McQueen.  It worked.... Joseph loved this toy, he could relate to this object that sat by itself on a shelf waiting for someone to want to play with it.... Joseph was that toy.  Every day he came in, took that lonely toy off the shelf and incorporated it into his play, his daily routine.  As he became more confident, Lightening McQueen became more of a symbol... a symbol of what Joseph was capable of and what he could accomplish.  That toy was never far behind, but was no longer a replacement for friendships. Joseph flourished.  When the year ended and Joseph was about to leave my class, that final day in June, I made a gift of Lightening McQueen to him.  That little frightened boy and that brave red car, had done so much for each other, had come so far together, and that's where they needed to stay ... together.

Lisa was on board with everything.  She is a mother that every special needs child deserves to have.  As a new year began, she researched, sought help, insisted on services and never gave up.  Joseph was fortunate to have an incredible shadow in his next class, whom he became very close to.  Lisa insisted on constant meetings between herself, the shadow, the director of the preschool and his teacher.  I know what she put into these meetings, the questions and the information she gave because, as the Asst. Director, I was included in a number of these.  Joseph worked hard and Lisa worked harder.  He has grown to be a wonderful person, afforded all the services in life he needed.  Without Lisa this never would have happened.

I will always love Joseph.  He and his family will always have a special place in my heart.

Andrea

Next Stop: A Chance Encounter

We moved across the country when our youngest was not quite 3 years old and began a new adventure for our family. Little did we know what sort of impact that SUBSTANTIAL change would have on our Toddler and how a chance encounter would change our lives forever.

An unanticipated discussion with a mom I met during a toddler gym class at a Little Gym in CA led us to a behavioral psychologist we hoped would help us gain clarity and insights into our oldest son's fluctuating behaviors and moods.  When I say fluctuating I am talking about drastic changes in behavior without warning - going from Happy and Laughing to Arm flapping, Screaming, Throwing toys, Kicking and/or Hitting in 1.5 seconds.  While my son's behavior ranged from participating in class, to holding his ears, sometimes running off to hide in a corner, flapping his hands and eventually melting down, the little girl, whose mom I had this conversation, appeared to be a happy, well behaved and polite child for the length of every class.  I tell you this information because while this adorable little girl appeared this way in class, her mother began telling me a very different story about her behavior at home - behavior that had gotten so bad they brought in a behavioral psychologist to observe their daughter and offer guidance on how to parent their daughter.  As our children participated in a group activity she continued to share the details of their home situation.  I sat there listening to every word she said, somewhat in shock of the words coming out of her mouth, at the same time I thought wow, maybe this professional can shed some light on our situation.  For those of you who ever watched the show Super Nanny, it appeared as thought we had stumbled upon our very own Super Behavioral Psychologist.  Was there a catch? Of course, there is always a catch.  They were convinced that had they been consistent with the tools given to them the behavior would have changed, yet doing so took a lot of time, energy, patience and consistent parenting.  The mom went on to let me know that although they had spent the time and money to bring this person into their home and evaluate the situation, behaviors and provide tools to guide them toward better parenting and less drama within the home, they chose not to consistently follow the guidance.  The result - no behavior change.  By this time, I had heard enough.  I wanted to meet this person and should she believe there were tools to help us help our son and ourselves parent better we would do exactly what she said, or at least try our best to do so. 

Fast forward 2 months or so and it’s our turn to meet with the person who we hoped would lead us away from this stressful, challenging and very frustrating home life toward a more peaceful, happy and collaborative one where we could engage with our child absent of several hour-long meltdowns.  The knock on the door began the next several chapters of our journey.  We expected her to be at our home for up to 2 hours, but when our son's alter ego type behaviors failed to come to the surface she chose to stay, observe and chat with us until they eventually came out which happened just shy of a 4 hour home visit.  If you are wondering why it took so long, I wondered the same thing on that day and after living out that day, I can share my answers with you.  Your child may not act/react the same way as mine did, but the details that follow may help shed some light on your situation, giving you just enough hope to keep fighting the fight for the betterment of your child and your entire family.

The initial meeting was as much about us as it was about our son's behavior.  What does that even mean?  It means that the events of our past and present 100% affected and will always affect our children's behaviors.  Whether it causes anxiety, happy/sad memories, outward behaviors etc., it all comes full circle and each event impacts the next which eventually, given the change may change one's personality and how they view the world forever - sometimes for the better and unfortunately sometimes for the worse.  Leading up to our move west our family had been through a major health scare, followed by removing our toddler from his home environment, including seeing his Babushka 2 times a week to moving across the country where he knew only his mom and dad.  As this professional peeled back layers of the previous 2 years, one strip at a time, so much was revealed and at least for me, some things began to make sense.  The initial observations showed that he had some sensory issues, could likely benefit from OT and the rest was yet to be determined. We also deciphered it was likely some of his behaviors were intensified due to circumstances out of our control.  Tough information to digest given I don't like to not be "in control" of situations - That personality trait has surely changed over the years - not because I wanted to change because circumstances forced me to change.

This is not to say I was happy with our reality, just that I began to understand how we got here and why our son was exhibiting some of his behaviors.  Once this revelation took place, I jumped into "now what" mode.  Just then she stopped me in my tracks, sat down with me on the couch and asked me one question - "How are you dealing with all of this?" in an instant and without warning, the tears began to stream down my face and all of what had taken place over the previous 12+ months came to the forefront of my mind and I was forced to deal with all the emotions I had bottled up inside.  That day began a full on emotional loopy-d-loop roller coaster ride for me; one that continues to this day.  The good news is that I have learned to deal with my emotions, channel my energy for the good and work through my anxiety to minimize the effect it has on my kids and other relationships.  On this day I had a breakthrough that would change my life forever.  For the first time in my life, I realized it was ok to be vulnerable, to ask for help, to not hold the weight of the world on my shoulders and most importantly it is ok not to have all the answers nor be able to "fix" everything for those you care about.  It is a team effort, hell, sometimes a Village effort to move mountains and it all begins with a willingness to set aside one's pride, admit there may be a unique way of approaching/dealing with situations and be vulnerable enough to ask for HELP.  Starting to see a pattern here?  If you never let anyone in, listen to different viewpoints, admit you need guidance don't expect anything to change.  If you always do what you have always done, you will always get what you have always gotten.  If that is what you want, no need to read any more of my posts, however if you are ready to take that first step, kick that first pebble, push that first rock or climb that first mountain I encourage you to keep following me through our journey. I can't promise you that what we have done, continue to do or will do going forward is going to be exactly what you or your child needs, BUT I can promise you I will provide details on what worked, what didn't work, the progress and the setbacks along the way.  

#InspireResilience

 @BResilient4U

When Conflict and Character Collide

I did a search for Character and self-awareness definitions and found this: Google defines Character as the mental and moral qualities distinctive to an individual and Self Awareness as conscious knowledge of one's own character, feelings, motives, and desires.

The most interesting thing to me about these definitions are how similar they are to one another.  I read them as Character being how others see you and Self Awareness being how you see yourself.  Furthermore, telling me that how people perceive one's character and their own self-awareness certainly differs from person to person.  I personally believe that some people really are "wolves in sheep's clothing" changing their character depending on a situation, pressure, circumstances etc. to suit their needs.  It very likely happens more than you realize and while I don't support or agree with it - like it or not - it is reality.  

Have you ever been in a conversation where you expressed disbelief or a difference of opinion through factual statements in a decision that was made only to receive a combative, emotional and contradictory response, completely inappropriate for someone in the level of authority and tenure the person held? Perhaps the person sitting across the table was exuding behaviors far different than the one's most people saw at the surface.  Maybe it was a person you trusted, confided in and at times even defended and in that moment, you find your mind wondering who is this person sitting in front of me, the one who smiled and talked through tough situations and now confronted by your facts spouts off inappropriate responses that don't add up to a legitimate reason for what is taking place - going so far as to place blame on others instead of taking accountability for what was to come.   Sure, the face and voice were the same, but the words and the body language did not resemble the person you thought you knew well placing Conflict and Character at the forefront.  Perhaps instead, your conversation took place during an annual school IEP or 504 planning meeting where you thought the team was going to tell you how they were helping your child.  You go in with no documentation nor fact based concerns that back up your feelings around the additional services you think your child needs to be successful in school.  You are a nice person at the core and the way people view your character is extremely important.  The meeting doesn't start out as planned and you are caught off guard as you sit across the table listening to the school IEP team tell you that there is nothing more they can add to your child's plan because there is no evidence to show otherwise.  In response you become agitated which only makes the conversation go more south and suddenly you begin shouting and perhaps even cursing. Conflict created a crack in your character which then went on to impact the entire meeting, resulting in nothing being accomplished for the betterment of your child. By now Conflict and Character were completely at odds.  You walk out of there feeling angry and defeated while the school IEP team walks out thinking you are a bitter parent not willing to collaborate, compromise and/or listen to their side of the facts. 

There are many examples I could have used, so this is not to say what is written here are the only scenarios where you will see conflict and character show up in an ugly fight against one another. 

It certainly has happened to me, one time truly catching me way off guard - why - because I thought I had a good perspective and pulse on this person's Character and who they were at the core.  I thought of this person as a mentor, advocate, appearing self-aware from the lessons learned and those she shared with me so I wouldn't make the same business decisions she had over the years - simply put - I held this person in high regard as a professional, colleague and friend.  I had heard from others that there were two sides to this person, yet I chose not to believe it, perhaps because I didn't want it to be true.  Then one day I became the target of "the dark side" and much of what I thought I knew, things I had defended were coming at me like lightning bolts - In that moment I realized the "in the moment" reactions, words spouted off and body language of the person I thought I knew well was their true self and the other persona was their game face.  I admit it - I was fooled!  As I listened to this person's words contradict the very things they preached to others and to me at times, their true colors came shining through and in that moment a piece of my innocence went out the window along with much of my respect for this individual.  The outward happy and quite professional business persona, the person who said they only wanted the best for me, would always be there to support, guide and be honest, the same person who behind closed doors shared confidential conversations and frustration with me over the years had vanished and been replaced by someone that I no longer recognized nor trusted.  It may surprise you to hear that I am still happy to have known this person as I learned a lot about who I am, what I do/don't want and that I really need to be a little less trusting of people because when push comes to shove and Conflict Head-butts Character you never really know what the outcome will be.

Life is funny that way.  We never really know what the outcome will be in any situation yet we keep moving forward which I suppose is what makes life fun, mysterious, frustrating, adventurous, painful and enjoyable all at the same time. 

Whether dealing with a personal or professional situation when confronted with a situation where Conflict is in a state of opposing force from Character, before responding to the situation try the following: Step back, take a few deep breathes and think, I mean really think about your character and remember that one slip of the tongue where you spew out words you really didn't mean but can't take back come out of your mouth - loud and clear to the other individual - it is your integrity and character on the line.  Maybe you don't care what others think of you or about you. In some cases that is not a bad trait to have, and who am I to judge if that is how you really feel.  For me however, every situation is a lesson learned so when it comes to Character I don't allow Conflict to create a crack in my Character, instead I contemplate if my actions/reactions to someone else is how I would hope they responded to me and then I respond with my integrity intact.  Much easier said than done - it takes a lot of self-control and practice - In the end it is worth the results! 

How will you react if/when you find yourself in a situation where Conflict and Character Collide?

Communication is Key

Many take for granted the ability to communicate, the power of words and impact the ability to speak or not speak has on oneself and those around us.   I admit that I used to take all of this for granted, but no more, now I am grateful for the abilities, skills and tools innately within me.  How about you?

Humor me by doing as I ask here………. sit back, close your eyes and try to imagine yourself unable to verbally communicate with your children, your spouse, your parents, your co-workers, an acquaintance or even a stranger who may have asked you a question.  Now let's try this one more time but slightly different focus………sit back, close your eyes and try to imagine yourself unable to comprehend and/or process something or anything your children, your spouse, your parents, your co-workers, an acquaintance or even a stranger said to you.  For those of you who did this experiment with me, how did it make you feel? In all honesty, visualizing this situation as it was happening to me, leaves me feeling frustrated, annoyed, angry, irritated, sad, alone, isolated and my list could go on and on. 

Wondering why I asked you to play along with me -  It's because I wanted you to feel, even if just for a moment, the way my oldest son felt for the first 6-8 years of his life.  Think about it for a minute - I mean really think about how hard it must be to live in today's world, know you are different, craving to be normal, yet don't have the innate abilities that others are so often born with and take for granted. In a future post I will go into detail about the social behaviors, both actions and reactions, that were a direct result of his disorder and the "missing social skills" but for today I will stick with communication as it relates to Words, not actions.

Some Partial results from a Google search define "Word" and "Speech" as follows:

WORD - a single distinct meaningful element of speech or writing

SPEECH - the expression of or the ability to express thoughts and feelings by articulate sounds

Our son struggled to come up with words, let alone be able to speak them.  New parents and unsure what to do, I went into laser focus mode and began doing research, investigating options, sought guidance from other first-time parents and certainly professionals that had experience in areas our child was struggling.  The ultimate goal was to gain an understanding of our reality, process what it meant and most importantly, provide him with any/all relevant early intervention support services we could find as a result.  We had no idea what we were going to uncover, and in all honesty, being a first-time mom, wondered if I was overthinking and seeing things that weren't there.  Oh, how I wish that was the case - not only was I not overthinking, the number of issues that came to light as we peeled back the layers, one by one, was enough to make anyone implode.  But, we couldn't implode nor escape because we are his parents, brought him into this world and owed him the happiest, most fulfilling life possible.

Quick reminder of his results:

Communication - two parts to this one - auditory comprehensive and expressive communication

A 25% delay in his development of expressive communication

Grateful to have the results, confused by what they mean and unsure what we do next the best decision was to trust that the recommendations for next steps made sense.  So, we entrusted them with our son, welcoming them into our home to begin Speech/Language services. Why? Because while we had no idea what any of this had to do with his ability/inability to use his words and/or follow simple 1-2 step directions like others his age, we had nothing to lose and everything to gain by moving forward with their recommendation.  This, my friends, acquaintances and those I don't even know, was our first of many experiences with early intervention. 

As I reflect on that initial decision, almost 9 years ago now, to accept the offer for speech/language services, I am overrun by a sense of calm and absolutely no regrets, knowing we would not be where we are today, had we listened to those that told us not to seek help.   The decision was 90% gut instinct and 10% our pediatrician standing in the room with us asking "what do you have to lose by getting a free assessment".  When we said nothing, she smiled, left the room for a few minutes and returned with information on where we should call to schedule the intake/initial assessment. 

I will end this one with a lesson learned very early on in our journey: There will always be those that think you are overreacting, others who say it will pass with age, and even some who think they can "fix" your child if you give them some time.  I am here to tell you, regardless of what they say, TRUST YOUR GUT.  Had I let their words, emotions, opinions and even some of the test results guide our decisions, who knows where our son would be today.  I am 100% confident that Collaborative Communication is a key ingredient and had we not followed our gut, our son would never have learned the skills necessary to be successful in school(academically, socially and emotionally) let alone be the 5th Grade GT student he is is today. 

The Very Beginning

Our pediatrician was extremely helpful and supportive of us, new parents, with concerns about their son not yet talking more than a few words. We weren't sure if it was because he didn't have much interaction with other children up to 23 months of his life or if there was some other underlying issue that was affecting his ability to speak.  After an in-depth discussion with our son's pediatrician, we all agreed that we had nothing lose and everything to gain by having a special educator that worked with Infants and Toddlers conduct a FREE assessment in our home.  

I guess one could say the journey toward diagnosis and early intervention services officially began in November of 2008 when a Baltimore County Infants and Toddler Program representative knocked on the front door of our home in Owings Mills Maryland.  In that moment, we had committed to what has become our life.  During today's post, I will do my best to recreate our day, allowing you to really connect with and understand what took place during this first assessment. 

Given that he was our first and we had nothing to measure against nor any background in early education, we had no idea what to expect when the special educator showed up at our door that day with a bagful of "goodies" to help guide and engage our son in assessing him as accurately as possible. From what I recall I was nervous, yet hopeful.  The special educator spent a few hours at our home, mostly playing with and/or observing our son and sometimes asking us and/or our nanny questions. 

During the testing, this special educator observed his behaviors, actions and reactions.  He used a few real words, some sign language but mostly jargon and when given directions, to respond, the verbal directions had to be restated.  Additionally, he wandered off and it was difficult to prompt him to participate in most tasks related to find motor and cognitive subtests. Once she had seen and heard enough the session ended and we were told someone would be following up with us via phone on next steps - that is if there were going to be any next steps.  For those that have dealt with early intervention services, especially those supported by the state, know the results are reviewed and scrutinized and sometimes even with there being evidence of a need for services, they are not provided.  If you are a half glass full kind of person then you would agree if I said Thankfully that wasn't the case for us - but if you are a half glass empty kind of person, you may disagree and instead be thinking that it was disappointing we found out that the results indicated there was a greater than 25% delay in numerous areas qualifying him for Infant and Toddler services through Baltimore County.  No matter how you see it, I am grateful that the delays were identified and we were accepted into the program.  The call came about a week later and the verdict was in - 4 out of 6 areas assessed were at least 25% delayed compared to his chronological age at that time in his life.  You may be wondering what that means and so I will share it with you as I dug deep into our archives this morning and found the original documentation detailing this very information.  So here we go………

On par with others at his age:

Auditory Comprehension

Information necessary to receive information

Self Help

Development of skills such as eating, drinking, dressing and sleeping

Gross Motor Skills

Ability to control large body movements such as head control, sitting, crawling, walking

25% or greater delay:

Communication - two parts to this one - auditory comprehensive and expressive communication

A 25% delay in his development of expressive communication

Cognitive

Significantly greater than 25% delay in his development of mental processes related to thinking, remembering and reasoning (ability to convey information)

Social Emotional

Significantly greater than 25% delay in his development of emotional expression, relationships to others, self-concept and play skills

Fine Motor

Significantly greater than 25% delay in his ability to coordinate small muscle movements to perform eye-hand coordination tasks, and to manipulate objects

Sigh, yes ma'am and sir we have a lot going on and for those who know me well know I am an all or nothing type gal, someone focused on "fixing" things, so this was no different except it was a lot different because in order to move forward we had to take a step back and tackle one delay at a time because doing it any other way would be too overwhelming for our son and we would likely find ourselves spinning our wheels and our son spinning out of control with meltdowns due to frustrations caused by all of what we now know is triggering some of his mood swings, inability to communicate, tantrums etc.  The fact is, he wasn't being defiant or acting out just because, there were a considerable number of delays affecting his ability to meet the milestones of others his age.

Nothing about this journey has been easy yet it has been worth it.  Every step forward or back has taken us on this adventure with lots of bumps, twists and turns, leading us down roads that were sometimes dead ends, at times road to nowhere and at other times bringing us steps closer to where we are today.  Had we not taken these risks our son would not be where he is today, thriving in a sometimes cruel yet wonderful world.

My next post will take you deeper into each of the above, bringing you into the world we know and how far we went to help our son along with all the villagers that joined in offering guidance, support, encouragement and sometimes their unwelcome reprimands asking why we would be spending so much time, energy and money figuring out how to provide the best life possible for our son. Stay with me on this journey and you will find out How and Why!

Overwhelmed with Gratitude

Many thanks to those who commented in response of my decision to finally share our story with the world, or whoever feels like reading it. I read/heard everything from Amazing, Brave, Generous, beautifully written, wonderful mom to I really connected with your writing style and wanted to know more. 

Those intimately involved in working with us and/or seeing this transformation unfold before their eyes have been urging me to share my stories with the world, yet I always stopped short of doing so out of fear, insecurities, or simply a lack of confidence that people would really want to read about it.  While I wasn't ready to do so, I did give them permission to share the appropriate details with others who felt stuck, unsure what steps to take next and/or just wanted to know they weren't alone. Much to my delight, one or more of the posts provided the strength for some to keep fighting for whatever support their child needed to be successful in school and in life. 

I am just a mom and wife of 2 amazing boys with a love of writing and a need for an outlet to write down my feelings.  No matter how many lives I touch with this process, I will continue to stay humble and use this blog as an outlet - a way to reflect and recharge as we forge ahead day by day.  I always dreamt of writing a book - one that touched the lives of others.  While I've had a love affair with writing and wanting to help others help themselves since I was a young girl, I never thought my journey would be one eventually shared with the masses in hopes of inspiring resilience in others to never give up. 

But it did and so here I am connecting people to our journey, hoping some will learn from it, others will share it with someone who could benefit from reading it and perhaps a few that are intrigued to read more and simply choose to come along for the ride.   

Whatever the reason, I thank you, am overwhelmed with Gratitude and hope I live up to whatever it is you are expecting from me.  

Caution: Strap on your helmets - It's a bumpy ride

Following the lyrics of a song from my favorite Musical "Let's start at the very beginning, it’s a very good place to start" I am about to embark on this journey with all of you - step by step, layer by layer I will share our story with those who wish to read about it.  I can't promise that the posts will reflect a full play by play, but what I can promise is they will most certainly reflect on all we have been through, opening up about the tough times and successes all the while sharing the details of what we learned and how we made it this far.  I will intertwine past and present where it makes sense and provide updates on our younger son's journey that has truly just begun to unfold.  Whether the posts make you smile, laugh, shake your head or even cry, I hope you find yourself learning something or growing somehow from our journey.

I spent most of my mid to late 30's becoming intimately familiar with Autism Spectrum Disorder(ASD) and Sensory Processing Disorder(SPD).  Not out of curiosity - out of necessity. We had two options, place our son on medication and cross our fingers that it will do the trick to "mask" the disorder that sat within him OR meet it head on by doing everything we could to provide my first born with the tools necessary to allow him an opportunity to live the best life he could to his full potential, whatever that was meant to be.  We chose option 2 and will never regret one moment spent researching websites, talking to professionals, learning the ABC's of ABA going to IEP meetings nor spending gobs of money on private OT, behavioral and social skill classes for our son who now has the tools in place to cope with much of his disorder and outwardly shows himself as sarcastic, happy, respectful, empathetic and sensitive 10 year old or Pre-Teen as he calls it. 

Our investigation, research, testing, evaluations, persistence, resilience coupled with the support and guidance from the village of educated specialists and supporters led us to his diagnosis of ASD, SPD & Borderline Intellectual functioning and just for good measure anxiety came along for the ride.  How does a child diagnosed with these disabilities/disorders, someone who required a multitude of special education services from toddler through 3rd grade, end up shifting off an IEP and onto a 504 plan? In 3rd grade he had become a peer in the inclusion classroom and in 4th moved into the non-inclusion classroom, with the above grade level and GT kids and most amazing to us bringing home report cards that show straight A's in everything but PE.  Should you choose to come along for the ride, I will do my best to take you through the raw details within each stage of the timeline below.  

Timeline estimation:

23 months old

• Infants and Toddlers of Baltimore County evaluation complete
• Speech services started through this program

28 months old

• behavioral psychologist evaluation complete

30 months old

• OT services begin for SPD, gross and fine motor skill delays and the inability to self-regulate

3 years old

• Shadow hired as 1:1 support during preschool 3 of 5 days

4 years old

• Tri-County Services of Ventura County evaluation conducted
• Diagnosed with Borderline Intellectual Function, Autism Spectrum Disorder and Sensory Processing Disorder
• Based on diagnosis, ABA services were recommended and paid for through the state but provided by an ABA Organization
• Entered a Social Skills program led by behavioral psychologist

4.5 years old

• Oak Park School educators met with us and our dream team to conduct IEP evaluation for potential qualification and goal planning
• IEP created and implemented

5.5 years old

• Kindergarten at Ilchester Elementary school begins with IEP intact including the following services:
• Speech
• inclusion classroom
• Shared para-educator able to take him out of class for a walk when he couldn't self-regulate, process or say how he was feeling

6.5 years old

• First Grade - IEP intact
• Speech continues
• inclusion classroom
• Shared para-educator able to take him out of class for a walk when he couldn't self-regulate, process or say how he was feeling

7.5 years old

• Second Grade - IEP intact
• Speech continues
• inclusion classroom
• Shared para-educator able to take him out of class for a walk when he couldn't self-regulate, process or say how he was feeling
• Psych services added to deal with anxiety

8.5 years old

• Third Grade - IEP dismantled
• Transitioned onto a 504
• Speech discontinued
• Psych services continue
• Inclusion classroom - this time as a peer
• No para-educator as it is time to let the bird fly free

9.5 years old

• Fourth Grade - 504 continues
• Peer to Peer class placement
• GT Math placement
• Psych services available as needed

10.5 years old

• Fifth Grade - 504 continues
• Peer to Peer class placement
• GT Math placement
• Psych services available as needed

My husband loves that my best kept secret is out, however said I shouldn't write about him :) Good thing I didn't agree because this part of us needs to be shared.  People often ask me how our marriage has survived the trials and tribulations life has thrown our way since our oldest was 9 months old and my consistent response states that our foundation is strong - built on friendship, trust and respect.  Times haven't always been easy and we continue to deal with many struggles that come along with both our children's disabilities and of course our own idiosyncrasies, yet we choose to forge ahead together, learning and growing with every success and mishap all leading us to become more understanding and patient with one another as we move through this bumpy journey together.  Of course, a sprinkling of Sarcasm and laughter always help us make it through when overwhelmed by a situation and unsure what to do next. 

It is difficult for those that didn't know us at the start of this journey to understand the magnitude of this transformation nor the reality that while he doesn't "look or act" like he has autism he exerts a lot of his energy each day making sure that no one can see what still lurks inside.  While he has come a long way, Autism isn't something that will ever disappear completely and just when we let our guard down some of the behaviors, feelings and reactions rear their ugly head and we are reminded once again that this is his and our reality.  Sure, there are times when I ask why us, why him but the truth of the matter is he is one of the most amazing individuals I have ever encountered and not a day goes by that I don't learn something by being his mom and a part of this journey.  Love shows no boundaries and love in its purest form isn't always easy but it is always unconditional. 

To an acquaintance or a stranger, he looks like a happy, typically developing thriving 5th grader and to us he is the true meaning of perseverance and resilience.  If you choose to follow my journey, strap on your helmet because I am about to take you on a bumpy ride.

Putting myself out there in hopes of inspiring resilience in others

Posted today on Facebook..........

Those who know me well, know that I am a true believer in paying it forward and helping others help themselves and their loved ones where possible, yet I am also a very private person which makes it tough for me to let my guard down and be vulnerable enough to share my story with strangers. I am blessed with many connections from acquaintance to former teammates/coaches/colleagues, to a village of educators that have guided and supported me over the years and most importantly the few very best friends who continue to stand by me, guide me, lend an ear and support me through thick and thin.

A small percentage of these people are aware that I have been blogging since my 10 year old was 2.5.  What started as an outlet for me has turned into so much more.  My initial focus was on the raw reality of trial and error, as we tried to figure out what was going on with our son and once diagnosed, how to raise a child with Autism.   Since then, our 7 year old has been diagnosed with ADHD among other things and the blog has evolved into posts around many types of early intervention and the results or outcomes of doing so in a timely manner or doing nothing at alll. 

Just last week my husband asked me if I was posting on social media, Facebook and/or Twitter as he and others have continuously encouraged me to share the success and failures on this road less traveled with others. This latest attempt worked as he convinced me to create a twitter account in an effort to reach a broader audience, sharing my blog in an effort to pay it forward, letting others know they aren’t alone, there is hope and last but not least inspire resilience!

And so it begins………You can find me on twitter @BeResilient4U https://twitter.com/BeResilient4U 

And so it begins……..A Milestone school year

Tuesday September 5 was the start of our 2017-2018 school year.  We have a first day of school tradition in our neighborhood - one that was bittersweet for me this year because it marked my oldest son's last year of Elementary school and from what my neighbors with middle school age children tell me - very likely the last year he won't fuss about the first day of school picture tradition.  Given that in the fall of 2018, he will be at the middle school and start much earlier than his little brother, it is quite possible the next first day of school pic I will take of them together is Freshman year for my youngest and Senior year for my oldest.  Just another reason it was a bitter sweet start to the school year.  In full transparency, this marks the first year I shed a tear on Day 1 of school and for those of you that know me well, I cry lots of happy and sad tears but for some reason the first day of school never seemed to ignite the waterworks.  This year, well this year was different.  As I watched the neighborhood kids take a group picture and then line up by grade for more pictures, memories of the last 6 years came rushing in and slowly but surely, I began to tear up. Given that I forgot my sunglasses - just my luck - I did my best not to look anyone in the eye and cautiously wiped away the drops that fell to my cheeks.  After pictures, our entire crew, kids and parents took the inaugural first day walk to school. 

This year felt much different than past years as my oldest ran ahead with his friends, my little guy stayed behind with his friends and I found myself with neither boy holding my hand and instead surrounded by the neighborhood moms and dads.  This moment caused a wave of mixed emotions to rush through my mind.  As we continued walking through the neighborhood and over to the middle school side walk, my little one caught up to me, grabbed my hand for a moment, smiled and then took off running toward his friends who had continued walking toward the elementary school; the older one already at the front door of the elementary school with his friends.  I was thrilled with how far my 5th grader had come and who he was transforming into as a young man, or a pre-teen as he calls it and loved seeing how independent the little one was becoming.  On the flip side, it made me a bit sad as I felt them slowly slipping away - no longer little boys that constantly needed their mama/mommy close by to help them feel safe and grounded.  My little birds were learning to fly on their own, figure things out and become who they were born to be……..with some guidance, role modeling and encouragement of course :)

Just before the first bell rang I got hugs, kisses and an I love you mama/mommy from each of my boys.  As I watched them walk into school together the waterworks began to flow and I decided that it was ok to let them come rushing out as this was the end of one book and the start of another.  As I walked home, tears streaming down my face, I reflected on everything we had been through, how far we had come and where we are headed; finally taking a deep breath and hoping that the first day would bode well for both boys kicking off this milestone school year on the right foot.

As I stood under the trees next to the blacktop waiting for the boys to emerge from the cafeteria where the children would be dismissed; optimism filled my heart and head, while anxiety ran high within my body.  It seemed like forever before the boys came out of school that day, yet despite the long wait, they came out smiling, full of energy and excitement about their teachers and classmates.  A feeling of pure joy and relief came rushing over me, the anxiety dissipated and I hugged my boys tightly, kissed each on the top of their messy hair and watched as they ran toward the middle school hill to play with their friends.  Laughter filled the air, the sun shined from the sky and all was right in the world.

Dinner was complete, the sun was setting - off to baths/showers they went - followed by teeth brushing and of course the typical diversions to avoid going to sleep.   As my younger one settled into bed for the evening, we went through the typical routine of sharing our happy thoughts for the day, bear included, and saying goodnight.  As I pulled the door closed so only a small crack remained, a sweet little voice said I love you mama and asked if daddy could come up for his turn to say goodnight. 

Next up my older one - out of sorts flexible bed time during the summer months - we had to nudge him off to bed.  He said goodnight to his dad and asked if I would lay down next to him for a few minutes and talk - of course I said yes knowing that any day now he may no longer ask.  As I pulled his door closed - just before he drifted off to sleep - I heard my not so baby boy say I love you Mommy.  Not sure why, but when I hear an endearing mama/mommy vs a shrieking Mom/Mother my heart skips a beat the same as it did the day they were born.  

It is in these moments I am reminded that they will always look to us for support, encouragement and guidance  -  just not in the same ways they had for the years leading up to now.

Early Intervention = Options and Opportunity

I am extremely fortunate to be forever connected to the gymnastics community I grew up with, traveled the country and some the world with through much of my childhood.  It is simply phenomenal that after all these years, we continue to learn from and lean on one another in challenging times.  Evolving from teammates, to friends to family, the bond I have with those who trained with me from Class 3 through the Elite Level is sometimes indescribable. The situations endured, adventures across the country and around the world coupled with the achievements and failures we shared are priceless and everlasting.  Like many other sports gymnastics is two dimensional in focus with the team and individual representation, however unique to any other sport, I believe gymnastics requires a combined mental toughness and physical strength unlike any other.

Aside from this unique aspect there are many topics that intertwine all Elite Level athletes.  I often stumble upon Facebook posts referencing the similarities around what happens to athletes when they retire from the sport they love and the only life they lived and breathed day in and day out for years, and sometimes decades.  While the latest article discussing the difficulty to transition into a post sport life mentions 6 main challenges one may face, all relevant I might add, Loss of Identity hit closest to home for me.   After all, starting right around 1982 my focus was simply on doing whatever I needed to win a US Championship Title and earn a spot on the '88 Olympic Team.  By the time I was in 5th grade I was leaving school an hour before the last bell, mom would pick me up and drive 30 minutes to the gymnastics facility where I trained.  She would head home for my brother while I spend the next 3-4 hours 3-4 days a week in the gym where my dad would show up on his way home from work and drive me home. From there it was leftovers from whatever mom cooked up for dinner that night, homework until my eyes began to close and then off to bed. 

I started middle school the following year and in that same year my gymnastics career took off.  Now instead of 3-4 days a week at 3-4 hours I was in the gym 5-6 days a week for upwards of 5.5 hours a day; only in school enough hours to take major subject classes and electives necessary to graduate.  In addition, I started traveling with my private club to competitions around the country; sometimes as close as Maryland and other times a 5-hour flight to California or Nevada.  There was also the occasional "dual meet" out of the country to places like Italy and England. 

The year I turned 12(1984) things seemed to really pick of speed as I made the US Jr. National Team and began representing the USA at international competitions; the first 2 meets being the Canadian Classic in Calgary and the following year the TBS Cup in Japan.  An honorable mention: I was selected to participate in the east coast portion of the '84 Olympic Gold Medal tour with some of my idols: Tracy Talavera, Julianne McNamara and Kathy Johnson to name a few.  An amazing experience that I will always treasure as one of my favorite gymnastic moments in time.  Over the next several years the future seemed very bright and the super highs well outweighed the dreaded lows.  I won competitions, especially uneven bars and my most memorable moment during my entire gymnastics career was the day I became the first person ever to compete a full-in back out dismount on uneven bars.  It was a game changer in the sport and in my confidence level.  

Over the next few years there were many successful moments that led to more highs than lows and in the fall of my Sophomore year I was asked by USGF (now USA Gymnastics) to represent the US in the Catania Invitational in Sicily.  I didn't care that I had missed weeks of school at a time traveling from meet to meet and lugging my school books with me to every competition. Why not? Because I was at the top of my game and well on my way to accomplishing the goal of becoming an Olympian.  In some ways, I would say I was an addict. What was I addicted to you may ask? The rush, the adrenaline, the thought of one day becoming an Olympian, but toward the end of 1987 injuries struck in avalanche fashion, the highs were replaced by lows that had me wondering what I was doing, where I was going and if I was as good as I once believed myself to be. 

I had endured great pain in the past and competed with injuries from stress fractures in my heels, broken fingers and even a concussion, so my heart said keep going, you can do this, yet my head was telling me something different.  From torn ligaments in my wrist to compression fracture in my back I was out of commission for some time, I grew over 3 inches, gained over 10lbs and lost my way.  I started wondering what life would be like going forward knowing I had failed myself, my parents, my coaches and those that looked up to me.  I was deflated and defeated with no focus, goals or future in mind.  It was then and only then that choosing a college became a discussion in the house along with the reminder from my parents that I was to either continue training to ensure I could keep full scholarship I was offered or the car they bought me would be taken away and I would be responsible for paying my way through school.  For some this would have been enough to "kick them" back into a state of motivation; for me it did the opposite and threw me right into a Twister filled with debris; picking up speed as it spun around and around with no end in sight. Despite my loss of love for the sport and motivation I trained and went to college continuing to do gymnastics. 

With the structure of my day to day life gone forever, I lost focus, longed for those closest to me who truly understood me, felt empty, confused, out of place…………. I didn't know who I was anymore and none of my college teammates or school friends seemed to understand the deep sense of loss I felt.  They were all having the time of their lives and while I pretended to do the same but the truth is I was falling deeper and deeper into a place I didn't like, spiraling out of control with no focus, no structure and no motivation to do anything but self-destruct. 

Throughout the next 4 years I spent a lot of time icing injuries and making my share of mistakes and bad decisions when it came to classes, gymnastics and my social life.  On the outside, I was this happy person while on the inside I was slowly fading away.  College should have been the time of my life, as it was for most of my teammates, especially my best friend.  By my Junior year, to try and keep myself grounded and regain focus on what was important, I found myself calling her constantly.  She had made amazing friends, was learning new skills and accomplishing goals.  It was the complete opposite college experience I was having and while I was very happy that she was happy it wasn't helping me get back on track.  As my college years went on I continued to feel less and less in control of my life and my future.

My reason for posting this blog is to teach others that Early Intervention has many different benefits. In this case, I didn't have a disability that held me back from meeting my full potential, instead I had missed opportunities to create an alternate reality should I need one.  Had someone in my life pulled me aside to ground me in the truth that only a handful of people made it to the Olympics and reality was I may not make it so I better pull together Plan B. Someone telling me I needed a Plan B may have PISSED me off, but at least it would have given me options and a path if my dream of one day becoming an Olympian was cut short.  Life can change in the blink of an eye and giving our kids the tools to choose wisely when the road shifts is priceless.

When I look back, had someone proactively sat down with me to discuss this very important potentially realistic crossroad I could have created goals, direction and a mental picture of what life would look like after gymnastics.  Instead I became a lost soul, unable to see some future past gymnastics and surrounded by people who just didn't get it and thought I should be able to forget the past and move forward with no regrets, no disappointment etc.  To them gymnastics was an activity with a means to an end whereas for me gymnastics was my life; the only life I had known from the time I was 5 years old.  The gym was my safe place, where I felt most comfortable and could feed my addiction of having a purpose, feeling invincible and knowing that others pushed me to be better, stronger and faster just as I had done for them.  It was safe, structured and with constant feedback.

I will wrap up this one with a quote from my very first coach: "When we hold back our best efforts because of what happened in the past, we are letting the past decide the future."  I spent a long time letting my past decide my future and always wonder what would have happened if someone had intervened early on with guidance/ideas on an alternative plan.  As a mother, I have learned to use those lessons to guide my kids through their life journey; teaching them that although there will be disappointments along the way, there is no need to lose faith as they always have options.   

The Struggle is Real and You are NOT Alone

Summer is nearing its end which means my youngest is about to turn 7 and before we know he will be heading to 2nd grade while my oldest goes into his final year of elementary school.  Routines are ever changing and going with the flow is not the easiest for either of my boys. It is typical for both to show elevated levels of anxiety as routines drastically change such as school starting.  New kids, new teachers, new classrooms, different part of the school…..and the list goes on.  You may be thinking to yourself, all kids get nervous before school starts.  While that is likely true, it is not common for the "typical" child to exhibit the heightened levels of anxiety observed by children with ADHD and/or ASD. 

As I sit here typing my anxiety begins to increase just thinking about all the changes that are about to take place.  I know this doesn't help ease the boy’s minds nor keep them calm, so I do my best to take deep breaths and stay calm, positive and optimistic about the weeks ahead.  I reflect on the last few years of "school prep" and do my best to recall the things that eased my kids minds and prepared them for the new school year.  First and foremost, we always attend the back to school open house.  Easing the anxiety that comes from the unknown and brings up question after question after question until one or both boys are so anxious they have become too wound up to calm down without sending them to a "quiet place" to compose themselves.  Attending this yearly event is standard routine and allows the boys to get familiar with their new classroom, meet their new teachers and see which friends are with them for the upcoming school year.  All important things for kids with and without anxiety.

One of the most interesting things I have come to realize is that it is not just about change in routine that causes anxiety to rear its sometimes ugly head, it is about the fear of the unknown, the expectations the kids put on themselves regardless of how supportive, open, caring and/or understanding we are with them as they many times struggle to understand and/or learn new things.  Sometimes telling the boys they are doing a fantastic job or we are proud of them no matter what backfires and sometimes even creates a meltdown you would not expect.  What would cause a meltdown in this case?   Glad you asked………. I will use my youngest as an example…..for him the internal thought that he is not doing what they expect of himself.  Perhaps working on a math problem, he understood a few days earlier only to forget how to do it b/c while he got it when it was happening due to repetition, not practicing it for a few days made it escape his memory. 

For both boys, the struggle is real and while the highs and lows may hibernate for periods of time, they never disappear.  Each individual disorder brings on different behaviors such as meltdowns and/or episodes of silliness, goofiness, spastic and/or OCD like behaviors that last anywhere from 5 minutes to a few hours depending on what started the wheels spinning and what eventually triggered the wheels to come unhinged. 

Over the years I have wondered who would care to read or benefit from brutally honest posts on the events and situations we have encountered, our daily struggles as well as the mental and physical toll it takes on all of us. Would anyone believe what I write is reality? Could sharing what we go through and what we have been through help others try something new, do something different or at least reach out for support because they realize they are not alone?  The answer is YES.  There are many families that feel they are alone in their struggle to figure out what to do next and why this is happening to them and/or their child.  I will continue to pay it forward with my blog with the goal of helping others know that they are not alone, their child is not "that different" and there is a village of people here to support them.  All you need to do is stop listening to those who say things like this: If you disciplined your kid differently maybe they wouldn't act out; Give it time and your kid will grow out of it; We all have sensory issues and the statements go on and on and on.   If your gut is telling you there is something more triggering your child's actions and reactions go with your gut, let down your guard, be vulnerable enough to raise their white flag and yell "HELP".  I promise you won't regret it!

Daily Forecast: Somewhere Between Sunny, Super Goofy and a Category 4 Hurricane

The daily forecast Somewhere Between Sunny, Super Goofy and a Category 4 Hurricane, fits with the diagnosis which helps us understand some of the behaviors, however that doesn't mean things will get easier, in fact now is when the really challenging work begins.  Why? In part because there is still so much we don't understand about ADHD in general let alone how to best help our youngest deal with it.  You may be asking yourself how that is possible given all the years we spent figuring out how to help our oldest with his ASD, SPD diagnosis and I am humble enough to tell you that I asked myself that very same question. How is it possible that I don't have the tools to guide, support and help my youngest work through the confusion in his mind?  

While outwardly there are many similar behaviors exhibited, what is triggering them is quite different.  You see when someone is high functioning on the spectrum ABA services are key in "retraining" the child's brain by removing the scratches from a CD Rom and replacing them with tools necessary to function "like a typical" child both socially and emotionally.  Now reality is that the social and emotional differences between someone on the spectrum and a "typically developing" child will never be the same. It is true that with the right amount early intervention many people may never know what life was like before the behaviors were "retrained" from what once overpowered and overwhelmed this child.  What is also true is that many people will look at you cross-eyed when you say your child can't stand in long lines, has trouble when plans change or can't calm themselves down without you hugging them so hard you think you may break some bones.  Unless you are in it you really can't comprehend it.  You can certainly empathize with or ignore the behaviors BUT Please DO NOT judge them for it.  The forecast for our oldest was once the same as this post title and has since moved to Mostly Sunny with a chance of sarcasm and an occasional tornado.  This kid, whose meltdowns would last upwards of 3 hours on any given day is now an overachieving straight A student with a sassy personality, great smile and a heart of gold. 

On the flip side - ADHD is like trying to remove scratches from a record so that when you put the needle on the track the music doesn't skip. Those of you old enough to know what a record is know that it is pretty much impossible to remove scratches from a record.  This my readers is why all of the tools, tricks and tips I received from my "village and dream team" over the years wasn't working as we tried to guide my little one back to the "middle"(a state of calmness).  The title of this post (Daily Forecast: somewhere between Sunny, Super Goofy and a Category 4 Hurricane) seemingly sums up what it is like living with our youngest son. Since we are an all or nothing type of family, it is not shocking to me that he has all 3 possible components (inattention, hyperactivity and Impulsivity).  As hard as it is for us, it must be that much harder for him.  It breaks my heart to think about what it is like to be in his own head with all his overlapping thoughts, inability to focus or think before he reacts or struggles to retain and recall information he just heard but didn’t really listen. At the same time, he is inquisitive, creative, always wanting to entertain, sometimes sneaky and always adorable.  

About a month ago he came up with the idea that every night before he goes to sleep we recite our happy thought for the day which I love.  Now I am sure it began as a way to "avoid" going to sleep yet I love it none the less.  One night a few days ago, he began asking me questions on a specific topic. After asking me his 10th question, something I had answered many times before, I reminded him that we already talked about it and kindly stated the answer. This isn’t something new for him (asking questions over and over) but what came next was different.  He looked at me, put his hand over his eyes and mouth, shook his head and said mommy why do I have so many questions?  It was as though something in his little mind realized it wasn't normal to ask so many questions over and over and over.  For a moment, I was joyful that he could realize this for himself, but that joy quickly turned to sadness and concern for all he must be going through internally that he can't articulate or control. 

We know that ADHD is a brain disorder that interferes with functioning or development, yet the million-dollar question remains: So where do we go from here to best help him?  For now, we continue to work with the IEP team, the teachers, support staff and psychologist to figure out the best protocol for our son. 

If you or anyone you know has a child struggling with ADHD, I would love to hear about your particular situation, what you tried and what worked and/or didn't work.

Miraculous Transformation - Bath Time Tears To Swim Team Triumph

Yesterday afternoon I took a stroll down memory lane by reading through the last 5 years of my early intervention blog posts and stumbled upon something I wrote back in 2012 about our oldest son's struggles with something called Sensory Processing Disorder.  

Flashes of those days that began 5+ years ago are still clearly visible in my mind. Just as visible in my mind is the amazing transformation that has taken place since then for my oldest.  From bath time tears to swim team triumph, his love of the water is far from those distant memories I wrote about in 2012. 

An excerpt from the post called Our Bath Time Journey  - written April 21, 2012

My earliest memories of my oldest in the “big boy” bath consisted of him screaming bloody murder, grabbing onto the sides of the door frame with all his might, me fighting back tears that many times came streaming down my face and then once we finally got into the tub, he would do everything in his power to get out. He would scream, try to hit, scratch etc. and try to crawl over the tub. It didn’t matter what we did…a little water, a lot of water, bath toys, and bubbles….he still wanted out. After months of barely getting him into the tub he finally became comfortable enough to stand in the tub, just long enough for me to wash his hair and body off without screaming. As long as he was in and out in less than 1 minute we were ok.

Surprisingly or perhaps purposefully the memories of the above times are not present in his memory.  You may be wondering why I would make that statement, well let me tell you.  Our almost 11 year old has a memory like a Dolphin which means he may not see someone or something for years, yet when we come across that place or that person the memories come back.  Part of me has to wonder if he "blocked out" those times because they were too painful, too frustrating or just too tough for him to handle.  At times I am envious of my son and even husband because they don't vividly recall those times like I do.  Then again it is those times that now bring a huge smile to my face, pride to my heart and joy to my soul.  If we hadn't gone through what we did, gotten the support from our "villagers and dream team" who knows where any of us would be today.  Thankfully we don't have to know what that reality would be like and instead can look back knowing that all of the blood, sweat and tears have led us here where I am able to write about it, talk about it and be proud of the accomplishments.  Never in my wildest dreams did I think we would make this Miraculous Transformation from bath time tears to swim team triumph.  I bet some of you are wondering why I said We and not he, aren't you? 

Here's why - From day one it was a team effort.  It wasn’t up to my son to change on his own, not up to the behavioralists, the psychologist, the OT, myself, my husband nor the educators alone to "fix" him.  It literally takes a Village. 

An excerpt from a post I called It Takes a Village - written September 12, 2011

If not for the team behind me, I am not sure where we would be today. If not for the team along side of me now, I think I would be quite depressed and at a loss for what to do next. I am not sad, nor depressed nor feeling alone any longer. Instead, I am in a great place, feeling extremely optimistic about the future and the wonderful life ahead for our family and our kids. 

Ironically the very thing that triggered the complete fear of a bath tub filled with only 2 inches of water, eventually became the thing that led him to love swimming. A fear of drowning turned into a feeling of complete freedom just before age 5. Water became his friend as he took private lessons in our pool and learned to swim from the steps to the wall(short length).  Eventually gaining the courage to swim the full length of the pool, his swim coach tried her best to get him to breathe as he swam from end to end.  Much to her dismay, he did just the opposite; not because he was being defiant, just because he like the way he felt when swimming end to end under the water. We would watch as he stood at the shallow end of the pool, dove down deep into the water and would glide from end to end without taking a breath until he reached the far side of the pool; emerging out of the water with a smile of pure delight all over his face.

Swimming went from something we wanted him to learn to something he enjoyed and eventually the sport he wanted to master going so far as setting a goal to make swim team.  Over the next several years he took lessons weekly and even tried out for a swim team only to be told he was too good for the junior swim team, but couldn't make the main swim team because he didn't have his flip turn.   Given his determination and expectation to make it, this could have crushed him, but instead he got back in the pool and worked toward mastering the flip turn.  After weeks of private lessons with a lot of time focused on the flip turns, the forward motion continuing to make him dizzy and unable to complete the move he had a decision to make.  He could keep taking lessons OR he could join a different swim team that didn't require a 10 year old to do a flip turn.  He chose option 2 and what a great decision it was for him.  The team he chose had friends from school and the neighborhood and coaches that were fantastic, having just the right mix of encouragement and expectations.  His drive led him to attend every morning or evening practice, sometimes both in one day in order to improve his strokes and speed.  Did it pay off?  Sure did!  Every meet led to a new "best time" for whichever strokes he swam (mostly free and fly), heat winners, more ribbons than he has ever seen and to top it  off, the coach chose him to award with the medal for most improved swimmer in his age group. 

Summer swim season may be over, but his journey toward greatness doesn't stop here for this kid.  After a lot of anxiety filled conversations along with some pep talks, he decided to try out for year round swim and made the team!   He is dedicated to becoming the best swimmer he can be and knows that it won't come easy, yet he is willing to commit and work hard at it.  In my eyes he is the epitome of what courage and determination is all about. 

It took a village to get us here and it will take a village to keep us going, but rest assured we will keep forging ahead, moving mountains, adding to our village and learning from every new situation we encounter along the way.   

I encourage you to share this post with those who may be able to relate and/or benefit from our journey.